My Son wants to help Gabrielle LaVerde from dying
My son Ryan, a 3rd grader, asked me to support his 1st grade friend and fellow classmate, Gabrielle.
Please join him and his Elementary school in trying to save their little friend Gabrielle LaVerde.
Gabrielle Laverde has been diagnosed with Niemann-Pick Type C disease. Only 300 cases of this terminal disease is known in the U.S., and only 500 worldwide. Without state-of-the-art experimental treatment overseas, Gabrielle doesn't stand a chance and time is running out. This is a cry for help to fund a trip to give Gabrielle a chance to fight this terrible disease. Please visit http://www.GabrielleLaVerde.com or send me an email for information on how to donate.
A Message from Janet Cason:
My name is Janet Cason. My dear friend, Danielle's only child has been diagnosed with Niemann-Pick Disease Type C. This is a genetic metabolic disease in which the body is unable to breakdown lipids. These lipids are then stored within the body's own organs. In Type C of this disease lipids are stored primarily in the brain. These deposits replace healthy brain cells causing multiple neurologic changes. This disease is diagnosed in early to mid childhood and life expectancy after diagnosis is merely 6-10 years.
Danielle and her husband tried for over 5 years to have a child. I know first -hand how it feels to want to have a child and be told that your chances are slim. Then miracle of all miracles you have the child you have always longed for. I cannot imagine going thru 4 years of testing, endless Doctor visits and mounting medical bills all while watching your beloved child become progressively worse. Imagine never again hearing the words "I love you", "Mommy", or "Daddy". Children with this disease lose their ability to speak, walk, move their eyes up and down, and eventually swallow. As they grow older they become more dependent. They can no longer run, jump, sing or dance. They cannot tell us how or what they feel. They are trapped in a body fighting against itsel
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reckless1962
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2008-03-17T00:00:00
My son Ryan, a 3rd grader, asked me to support his 1st grade friend and fellow classmate, Gabrielle.
Please join him and his Elementary school in trying to save their little friend Gabrielle LaVerde.
Gabrielle Laverde has been diagnosed with Niemann-Pick Type C disease. Only 300 cases of this terminal disease is known in the U.S., and only 500 worldwide. Without state-of-the-art experimental treatment overseas, Gabrielle doesn't stand a chance and time is running out. This is a cry for help to fund a trip to give Gabrielle a chance to fight this terrible disease. Please visit http://www.GabrielleLaVerde.com or send me an email for information on how to donate.
A Message from Janet Cason:
My name is Janet Cason. My dear friend, Danielle's only child has been diagnosed with Niemann-Pick Disease Type C. This is a genetic metabolic disease in which the body is unable to breakdown lipids. These lipids are then stored within the body's own organs. In Type C of this disease lipids are stored primarily in the brain. These deposits replace healthy brain cells causing multiple neurologic changes. This disease is diagnosed in early to mid childhood and life expectancy after diagnosis is merely 6-10 years.
Danielle and her husband tried for over 5 years to have a child. I know first -hand how it feels to want to have a child and be told that your chances are slim. Then miracle of all miracles you have the child you have always longed for. I cannot imagine going thru 4 years of testing, endless Doctor visits and mounting medical bills all while watching your beloved child become progressively worse. Imagine never again hearing the words "I love you", "Mommy", or "Daddy". Children with this disease lose their ability to speak, walk, move their eyes up and down, and eventually swallow. As they grow older they become more dependent. They can no longer run, jump, sing or dance. They cannot tell us how or what they feel. They are trapped in a body fighting against itsel
Please join him and his Elementary school in trying to save their little friend Gabrielle LaVerde.
Gabrielle Laverde has been diagnosed with Niemann-Pick Type C disease. Only 300 cases of this terminal disease is known in the U.S., and only 500 worldwide. Without state-of-the-art experimental treatment overseas, Gabrielle doesn't stand a chance and time is running out. This is a cry for help to fund a trip to give Gabrielle a chance to fight this terrible disease. Please visit http://www.GabrielleLaVerde.com or send me an email for information on how to donate.
A Message from Janet Cason:
My name is Janet Cason. My dear friend, Danielle's only child has been diagnosed with Niemann-Pick Disease Type C. This is a genetic metabolic disease in which the body is unable to breakdown lipids. These lipids are then stored within the body's own organs. In Type C of this disease lipids are stored primarily in the brain. These deposits replace healthy brain cells causing multiple neurologic changes. This disease is diagnosed in early to mid childhood and life expectancy after diagnosis is merely 6-10 years.
Danielle and her husband tried for over 5 years to have a child. I know first -hand how it feels to want to have a child and be told that your chances are slim. Then miracle of all miracles you have the child you have always longed for. I cannot imagine going thru 4 years of testing, endless Doctor visits and mounting medical bills all while watching your beloved child become progressively worse. Imagine never again hearing the words "I love you", "Mommy", or "Daddy". Children with this disease lose their ability to speak, walk, move their eyes up and down, and eventually swallow. As they grow older they become more dependent. They can no longer run, jump, sing or dance. They cannot tell us how or what they feel. They are trapped in a body fighting against itsel
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