West Syndrome: Zachary went to the hospital for an EEG because he's been having seizures the last week. While on the EEG he had a seizure and they had us see a neurologist right away. He's been diagnosed with West Syndrome which is basically infant epilepsy. He's scheduled to get a drug to treat it (it's not even available in the US right now... only Canada and Mexico), but the neurologist doctor has a NYC pharmacy that can import this drug legally. He'll also be scheduled to get an MRI as well as genetic testing. This will take place some time soon. There could be something wrong with his brain and that is most likely what's causing the delayed development, so they're going to check out everything to cover all bases. It might also answer why he was born the way he was since all tests on mommy came back normal. He also had an eye doctor appointment that discovered he is severely far-sighted and will have to wear baby-eyeglasses every waking moment. This may also help improve his development since he'll be able to see toys close to his face now :) Thank you for caring and for your prayers. It's been a rough time, but we believe in prayer to God and the healing power of our Lord and Savior Jesus Christ. While Renee, Zachary and I may be going through some tough times with this, we have hope in our Lord and faith in God... as Romans 8:28 tells us "And we know that all things work together for good to those who love God, to those who are the called according to His purpose." We recorded one of these seizure sessions and uploaded it here so you can see what Zach's going through.
https://newsnate.blogspot.com
West Syndrome: Zachary went to the hospital for an EEG because he's been having seizures the last week. While on the EEG he had a seizure and they had us see a neurologist right away. He's been diagnosed with West Syndrome which is basically infant epilepsy. He's scheduled to get a drug to treat it (it's not even available in the US right now... only Canada and Mexico), but the neurologist doctor has a NYC pharmacy that can import this drug legally. He'll also be scheduled to get an MRI as well as genetic testing. This will take place some time soon. There could be something wrong with his brain and that is most likely what's causing the delayed development, so they're going to check out everything to cover all bases. It might also answer why he was born the way he was since all tests on mommy came back normal. He also had an eye doctor appointment that discovered he is severely far-sighted and will have to wear baby-eyeglasses every waking moment. This may also help improve his development since he'll be able to see toys close to his face now :) Thank you for caring and for your prayers. It's been a rough time, but we believe in prayer to God and the healing power of our Lord and Savior Jesus Christ. While Renee, Zachary and I may be going through some tough times with this, we have hope in our Lord and faith in God... as Romans 8:28 tells us "And we know that all things work together for good to those who love God, to those who are the called according to His purpose." We recorded one of these seizure sessions and uploaded it here so you can see what Zach's going through.
https://newsnate.blogspot.com
